NURBN3033 Primary Health Report
K1: Analyze the bio-psycho-socio-cultural concepts of living with chronic conditions/illness for Australia's individuals, groups, communities, and populations.
K2: Critically examine common chronic illnesses and the impact that these have on people across the lifespan.
K3: Discuss the role of the nurse in the provision of evidence-based care for people living with chronic illness in Australia.
K4: Identify chronic disease models and the tools and resources used to manage chronic conditions in the health care arena.
S1: Assess the factors that influence the ability of people to live with chronic illness in today's society with consideration to diverse population and minority groups.
S2: Demonstrate evidence-based and person-centred care practice to populations living with chronic illness.
S3: Apply chronic disease model/s and clinical skills principles to resolve ethical issues relevant to the care of individuals, groups, communities, and the populations with chronic illness.
S4: Consolidate and assess nursing practice standards for people with chronic illnesses.
A1: Analyse and interpret the impact of an increasing prevalence of people with chronic illness on health care, nursing practice and government policy, and discuss the strategies and interventions adopted within Australia to address this.
A2: Demonstrate the ability to apply person-centred care for people living with chronic illness who, experience increased complexity and diversity of health care needs within Australia (NSQHS Standards; Aged Care Standards and Paediatric Quality Standards)
A3: Evaluate the significance of mental health literacy and consumer participation to the whole of person health in the context of their chronic illness.
This is the report for MBA assignment expert which is completely aligned in presenting a detailed analysis of case study regarding Sarah who is a 28-year-old female, is diagnosed with a disease like ‘Systemic Lupus Erythematosus’ (SLE), a chronic autoimmune disease. This disease makes a significant impact on the daily life of Sarah causing fatigue, joint pain, occasional fever, and skin rashes. The condition of Sarah is compounded through the flare-ups’ unpredictability and her medication regimen’s complexity that are both physically and financially demanding which have adversely affected her work opportunities, mental health, and social life.
The complete analysis utilises Wagner's Chronic Care Model’ for exploring the effective strategies in managing the condition of Sarah by emphasising the role of interprofessional teams during providing comprehensive care as well as the significance of the patient-directed SMART goals in the cases of enhancing the management of chronic illness.
This is the report which is focused on examining how the integration of these strategic approaches can improve the quality of life of Sarah with the help of providing a structured approach to her care. For this instance, the key points of discussion are completely included with three significant topics through which the complete analysis of the implementation of this chronic care model, role of nurse in the interpersonal team, and formation of SMART goals customised to Sarah’s needs. This concise overview can set the stage for a significant comprehensive exploration of several management strategies and complexities that are associated with the chronic illness of Sarah.
‘Chronic Care Model’ (CCM) which is developed by Dr. Edward H. Wagner (Timpel et al., 2020), is a conceptual framework that is completely aimed at improving chronic disease management. The model highlights the significance of a proactive and patient-centred care which involves multiple numbers of stakeholders that are working simultaneously. Following this model, two significant components are mainly allowed like self-management support along with the healthcare organisation that is vital in managing the illness such as ‘Systemic Lupus Erythematosus’ (SLE) as per the case of Sarah.
Self-Management Support:
Self- management support is crucial in the cases of empowering patients with chronic conditions to take an active role towards their care (Vainauskienė & Vaitkienė, 2021) which is completely involved in educating patients about the conditions, providing techniques or tools for managing their symptoms, as well as encouraging behaviours that can promote well-being and health. For the case of Sarah, suffering from SLE, this component can provide substantial benefits, which are as followed -
1. Empowerment and behavioural change - It encourages the behavioural changes like adoption of healthy lifestyle including regular exercise and stress management (Bossy, Knutsen, Rogers, & Foss, 2019) that can mitigate some of the symptoms of the chronic disease such as SLE as per the current case. It can be exemplified by learning stress reduction methods that could help Sarah in managing her overall fatigue along with improving her well-being.
2. Skill development and education - However, with help of educating Sarah about SLE, she can be able to get a better understanding about her trigger points, symptoms, and the significance of meditation adherence. Knowledge about the particular disease can empower her for recognising early signs of the condition flare-ups along with taking proactive measures in managing them.
3. Psychological support - As chronic illness can make a significant impact on mental health (Hacker, Briss, Richardson, Wright, & Petersen, 2021), by self-management support, Sarah can be able to access resources for supporting her mental health like support groups or counselling which can help alleviate the feelings of isolation and anxiety that are associated with her condition.
4. Decision-making enhancement - In addition to this, providing Sarah with techniques or tools like mobile health applications or symptom trackers can help her in monitoring her condition in a more effective manner. This enables her in making informed decisions in caring and communicating more effectively with her particular healthcare providers leading towards the timely adjustment of her planning treatment.
5. Economic benefits - Although, educating the patient, Sarah is a cost-effective medication option for lifestyle changes that minimise flare-ups can potentially lower the healthcare cost of Sarah. This is specifically relevant given the financial burden of Sarah’s medication regime.
Healthcare Organization:
It is completely focused on developing a healthcare environment that can support chronic disease management by systematic approach, coordinated care, and effective communication. It benefited the overall process of chronic disease management in the following way -
1. Interdisciplinary Care Teams - The chronic disease management often requires a significant team approach (Allegrante, Wells, & Peterson, 2019). For the case of Sarah, a coordinated care team comprises the mental health professionals, primary care physicians, and social workers which can address her significant multifaceted needs with a more effective way than the isolated practitioners.
2. Care Systematic Approach - However, standardize protocol implementation particularly for SLE management within the healthcare organization can ensure that the patient receives evidence-based and consistent care (El Miedany et al.2023) including timely interventions and regular monitoring of the condition during flare-ups along with measures of preventive care.
3. Access to Resources - Furthermore, a well-organised healthcare system can be able to provide Sarah an easier access towards the necessary resources like support services, speciality care, as well as patient education materials. Hence, having a dedicated case manager can help Sarah to navigate her complete care options developing connection with community resources.
Key Elements of the Nurse's Role
Care coordination and Management
Care coordination is one of the fundamental aspects of the roles of a nurse within the inter professional team. Nurses are essential in managing patient care plans in order to ensure that every related aspects of treatment are harmonized and executed efficiently (Karam et al., 2023). In the case of Sarah who is the 28 year old with Systemic Lupus Erythematosus (SLE), The role of the nurse in care coordination is essential due to the complexity and unpredictability of the condition of Sarah.
In addition to that it is also to be added that nurses act as an initial point of contact for patients in order to synthesize information from various Healthcare providers like doctors, pharmacy, physical therapist and social workers. In the case of Sarah the nurse coordinates her extensive medication regimen, Along with monetary response to treatment and also adjusting the care plans tailored for her as required. This process mainly includes the management of corticosteroids and immunosuppressive medications in order to control her with Systemic Lupus Erythematosus (SLE) fluctuations (Ameer et al., 2022). not only that the nurse has also anything role in ensuring that Sarah understand heart treatment plan and also adheres to it, given the potential side effect and the need for constant adjustments.
Additionally, nurses also facilitate communication between Sarah and her health care providers to ensure that all team members are providing current status and any changes in her conditions to respond promptly. This holistic approach towards Care Management adequately helps in preventing complications and hospitalization nearby improve in the quality of life and Healthcare of Sarah
Another major element of the role of nurse in patient care is patient advocacy and education. This is mainly because nurses are required to advocate for the needs and requirements of the patient along with their preferences in order to ensure that their voice is heard within the inter professional team (Nsiah, Siakwa, & Ninnoni, 2019). In the case of Sarah It is especially essential due to the chronic nature of SLE and the significant impact it can have on the social life and mental health of Sarah.
In the discussion it can also be added that nurses educate patients regarding their conditions, treatment options and self care strategies. In case of this procedure mainly included teaching her regarding managing SLE symptoms, recognizing early signs of flare-ups and also attitude adherence regardless of the cost. Not only that proper education also includes dictation on Lifestyle medications like avoiding Sun exposure to reduce skin rashes and adequate strategies to manage fatigue (Macejova et al., 2020).
In this case the nurse has played an essential role in addressing the mental health challenges of Sarah by providing emotional support and connection with her psychological health services when required. By advocating for the overall well being, the nurse has helped to mitigate the psychological garden of living with Economic illness.
Interprofessional Collaboration
Inter professional collaboration is also essential for delivery of high quality and patient Centered care. In this process nurses work collaboratively with other Healthcare professionals to develop and implement comprehensive care plans which ensures that all aspects of the patient's health or address. In the case of Sarah the nurses adequately collaborated with Rheumatologists in order to manage her SLE, with pharmacy in order to optimize her medication regimen and also with social workers in order to address the financial bird in offering treatment.
Goal 1: Improve Medication Adherence
• Specific
Sarah needs to adhere to her prescribe medication regimen as for the directions of her health care providers
• Measurable
She will take 100% of her prescribed dosage within next three months with weekly verification log
• Achievable
With educates support from her nurse she will use a pill organizer and say daily reminder for timely medication
• Relevant
Adhering to her medication schedule is essential for managing our symptoms and preventing fluctuations
• Time bound
She will aim to achieve these goals within the next 3 month
Impact
It will improve medication adherence which is essential for her health condition. This is mainly because SLE management and treatment required consistent use of corticosteroids and immunosuppressive medication to control symptoms and prevent complications (Malpica, & Moll, 2020).
Justification
Based on the medical condition of Sarah along with its complexity and cost, consistent adherence is essential to stabilize her condition. This is mainly because by taking her medications regularly she can avoid hospitalization and other complications reducing the overall burden of her illness
Role of nurse
Provide content support by providing education on the essentiality of medication adherence and its impact on her health. The nurse will also help in setting medication schedule and organization with weekly verification log to maintain effective Healthcare management with instant concern management
• Specific
Sarah will engage in low impact physical activities which will include walking or yoga for a minimum of half an hour for 3 times a week
• Measurable
She will also track a physical activity in a journal in order to aim for a total 90 minute per week
• Achievable
She needs to start with a 10 minute station and gradually increase it to 30 minutes with proper guidance from her nurse and physical therapist
• Relevant
Acquiring regular physical activity is beneficial in reducing joint pain, improving mode and increasing overall physical fitness which essential for managing SLE
• Time bound
She needs to reach her physical activity goal within the next 3 months
Impact
The major impact of these goals is the enhancement of physical activity levels that can significantly improve her physical and mental will. Not only that regular exercise in reducing joint pain and stiffness, boosting energy levels and improving mental health by alleviating the symptoms of depression and anxiety associated with chronic illness (Basta et al., 2020).
Justification
Considering the challenges of Sarah in terms of complexity and cost of her medication regimen, continuous adherence is essential to stabilize her condition. Therefore by regular medication she can avoid hospitalizations and other complications which will reduce the overall burden of ilness
Role of nurse
The nurse will provide continuous support by providing essential education highlighting the importance of medication adherence and its impact on Sarah’s health. The nurse will also provide assistance in setting up the pill organizer, creating a medication schedule and also checking on her health condition weekly in order to review her medication log and address any concerns.
Following complete analysing the ‘Wagner’s Chronic Care Model’ (CCM) Along with its application towards the management of ‘Systemic Lupus Erythematosus’ (SLE) particularly for the patient such as Sarah, the highlight of the model is allowed on patient-centred and proactive care which becomes evident. Here, the two critical components have been allowed such as ‘self-management support’ and ‘healthcare organisation’ offering substantial benefits specifically for chronic disease management. Together this component of the CCM facilitates an efficient and holistic approach in managing SLE, which can ultimately lead towards better healthcare outcomes as well as improving the patient’s quality of life. On the other hand, following the role of nurse in the interprofessional team, have been allowed to give significant insights about the impact of nursing care in managing the chronic disease, SLE for Sarah following the development of SMART goals based on the condition of Sarah.
Allegrante, J. P., Wells, M. T., & Peterson, J. C. (2019). Interventions to support behavioral self-management of chronic diseases. Annual review of public health, 40(1), 127-146. Doi: 10.1146/annurev-publhealth-040218-044008
Ameer, M. A., Chaudhry, H., Mushtaq, J., Khan, O. S., Babar, M., Hashim, T., ... & Hashim, S. (2022). An overview of systemic lupus erythematosus (SLE) pathogenesis, classification, and management. Cureus, 14(10). https://doi.org/10.7759%2Fcureus.30330
Basta, F., Fasola, F., Triantafyllias, K., & Schwarting, A. (2020). Systemic lupus erythematosus (SLE) therapy: the old and the new. Rheumatology and Therapy, 7(3), 433-446. https://doi.org/10.1007/s40744-020-00212-9
Bossy, D., Knutsen, I. R., Rogers, A., & Foss, C. (2019). Moving between ideologies in self‐management support—A qualitative study. Health Expectations, 22(1), 83-92. DOI: 10.1111/hex.12833
El Miedany, Y., Elhadidi, K., Mahmoud, G. A., Abu-Zaid, M. H., Mahmoud, A. A., El Gaafary, M., ... & Mokbel, A. (2023). Egyptian recommendations for the management of systemic lupus erythematosus: a consensus, evidence-based, clinical practice guidelines for treat-to-target management. Egyptian Rheumatology and Rehabilitation, 50(1), 23. https://doi.org/10.1186/s43166-023-00187-9
Hacker, K. A., Briss, P. A., Richardson, L., Wright, J., & Petersen, R. (2021). Peer reviewed: COVID-19 and chronic disease: the impact now and in the future. Preventing chronic disease, 18. doi: 10.5888/pcd18.210086
Karam, M., Chouinard, M. C., Couturier, Y., Vedel, I., & Hudon, C. (2023). Nursing care coordination in primary healthcare for patients with complex needs: A comparative case study. International Journal of Integrated Care, 23(1). https://doi.org/10.5334%2Fijic.6729
Macejova, Z., Madarasova Geckova, A., Husarova, D., Zarikova, M., & Kotradyova, Z. (2020). Living with Systemic Lupus Erythematosus: A Profile of Young Female Patients. International Journal of Environmental Research and Public Health, 17(4), 1315. https://doi.org/10.3390/ijerph17041315
Malpica, L., & Moll, S. (2020). Practical approach to monitoring and prevention of infectious complications associated with systemic corticosteroids, antimetabolites, cyclosporine, and cyclophosphamide in nonmalignant hematologic diseases. Hematology 2014, the American Society of Hematology Education Program Book, 2020(1), 319-327. https://doi.org/10.1182/hematology.2020000116
Nsiah, C., Siakwa, M., & Ninnoni, J. P. (2019). Registered nurses' description of patient advocacy in the clinical setting. Nursing Open, 6(3), 1124-1132. https://doi.org/10.1002/nop2.307
Timpel, P., Lang, C., Wens, J., Contel, J. C., Schwarz, P. E., & MANAGE CARE Study Group. (2020). The Manage Care Model–Developing an Evidence-Based and Expert-Driven Chronic Care Management Model for Patients with Diabetes. International journal of integrated care, 20(2). doi: 10.5334/ijic.4646
Vainauskienė, V., & Vaitkienė, R. (2021). Enablers of patient knowledge empowerment for self-management of chronic disease: an integrative review. International journal of environmental research and public health, 18(5), 2247. 7. https://doi.org/10.3390/ijerph18052247